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40th Annual Meeting of the Society for Neuroscience

Here’s an update from SMA researcher and the co-chair of FightSMA’s Scientific Advisory Committee, Dr. Chris Lorson, on Neuroscience 2010.  The event, which was the 40th Annual Meeting of the Society...

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The FightSMA YouTube Channel

Hopefully you’ve noticed the ever-changing video posted on the front page of FightSMA.org.  What you may not know is that you can see all of those videos in one place, on the FightSMA YouTube Channel....

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“The Work of Breathing”: Expert Insights from a Pediatric Pulmonologist

For the SMA-affected, even breathing can be a special task, and maintaining proper respiratory health is a necessity that requires great care and attention. Dr. Nanci Yuan, a Pediatric Pulmonologist...

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SMA Symposia Meeting at the Society for Neuroscience

Official Event PDF: SAVE THE DATE SfN 2011 The Society for Neuroscience will be hosting an annual conference in Washington, D.C., November 12-16, 2011.  Neuroscience 2011 is “the premier venue for...

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FightSMA to be contributing sponsor at Care for Rare

On November 29, 2011, FightSMA will be sponsoring a dinner at Care for Rare, a workshop in Toronto that will chart a collaborative course for a multi-disease effort.  Dr. Alex MacKenzie, co–chair of...

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Media Release: New SMA Research out of Ottawa, Funded by CIHR and MDA

Staff note: Dr. Rashmi Kothary has been a frequent research contributor at FightSMA’s Annual Research Conference for many years, and is a colleague of FightSMA Science Advisory Co-Chair, Dr. Alex...

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FightSMA Annual Research Conference: Our 2012 Researchers

FightSMA is proud to announce the attending researchers for the Annual Research Conference, April 15-17, 2012, in Washington, D.C.!   Scheduled: Elliot Androphy, M.D.  -  Indiana University School of...

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Rock’n Out For Isabella Was Last Weekend…

…And it was a great success!  FightSMA Staff and Friends attended the event on Saturday, May 19, in Mechanicsville, VA.  It was a truly enjoyable evening of rock & roll music, and it was wonderful...

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In Honor of Avery!

If you plan to be in the Houston, TX area this Sunday, June 10, be sure to stop by The Harp! Friends and family of Avery Canahuati are hosting an SMA benefit in her honor, with proceeds going to SMA...

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“Avery’s Song”– now available for download!

Nashville singer-songwriter Randy McLellan has just released a single in honor of Avery Canahuati, entitled “Avery’s Song.” McLellan has generously agreed to donate half the song’s proceeds to research...

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MDA-NINDS Webcast Workshop

The Muscular Dystrophy Association (MDA) and the National Institute of Neurological Disorders and Stroke (NINDS) are co-sponsoring a workshop on April 22, 2014 8:00AM ET entitled, “Joint MDA-NINDS...

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